CONGENITAL HYPERINSULINISM (HI)

HI is the most common cause of severe and recurrent blood sugar drops in babies and young children.

In congenital hyperinsulinism, hypoglycemia is caused by “defects” in the mechanism of insulin secretion.

We could say that in HI, insulin is “blind” to the level of blood glucose and continues to be released even though the body is running out of energy.

The excess of insulin also prevents the usage of other alternative sources of glucose in those affected by HI.

Therefore, congenital hyperinsulinism, in addition to being the most frequent cause of recurrent blood sugar drops, is also the most serious form.

The brain is the organ that consumes the most energy of all our organs. Consequently, it is also the one that suffers the most through lack of an energy supply.

As in all diseases that cause hypoglycemia, with HI it is essential to find an early diagnosis and give adequate treatment to prevent incidence of neurological damage among those affected by congenital hyperinsulinism.

HI Associations

If you are looking for more information on congenital hyperinsulinism (HI), we recommend that you contact associations and patient groups.

These are the associations we know that work in supporting and helping treat HI around the world …

Internacional
Spain
United Kingdom
Germany and Austria
Argentina
France

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HI GROUPS ONLINE

Facebook

Main language: English

Facebook

Main language: French

Facebook

Main language: Portuguese

Facebook

Main language: English

HI Parents blogs

Loneliness and uncertainty are often two frequent feelings when facing a rare disease.
For that reason, we believe that it can help you to read the history of other families like yours.

Blog of a HI mom with information and useful tips on hypoglycemia, feeding and other related.

Languages: Spanish and English.

Blog of a HI family living with the disease, with information on technology and related medical news.

Language: English.

HI PARENTS BOOKS

Mamá «especial. Un camino a la felicidad
CRISTINA PINDADO GONZÁLEZ
Language: Spanish
Sugar: A Tale of Motherhood & Medicine
RAISSA HACOHEN
Language: English
Getting (HI)gh
ROBERT SMITH
Language: English

We have a lot of desires about the rare diseases causing hypoglycemia...
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Thanks to new technologies we can get information faster to its destination.

At The Hippo House, we want to put our two cents on families to find each other quicker.

Feeling supported at the time of diagnosis should be paramount. Facing alone the “grief of the healthy child” is very, very difficult.

For that reason, we hope we have helped you in this road that you are starting to walk along.

WHAT DO I DO IN AN HIPO?
HYPOGLYCEMIA
CAN I PREVENT THEM?

Are we missing something?

We want The Hippo House to be a really useful site,
where families can find support.

For that reason, if you know some association, blog or group and it does not appear in our web,
We would be very grateful if you send us the information 🙂